Roald Dahl’s Marvellous Children’s Charity

The programme is open to any family residing in the UK who meet the following criteria:

There is a child (or children) who has a serious illness that could be life-limiting, as described by the following:

Group 1 – Life threatening conditions for which curative treatment may be feasible but can fail. (e.g. epilepsy, irreversible organ failures of heart, liver, kidneys.)
Group 2 – Conditions where premature death is inevitable. (e.g. cystic fibrosis)
Group 3 – Progressive conditions without curative treatment options. (e.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)
Group 4 – Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. (e.g. sickle cell disease, cerebral palsy, multiple disabilities such as brain or spinal cord insult.)
Group 5 – Syndromes without a name (SWAN) causing severe, chronic disability or illness.
The Charity’s remit excludes all forms of malignant cancer owing to levels of support for children and young people with cancer being far higher than those for other conditions.

The child (or children) is eligible to receive Medium or High Rate DLA (the Care component) or the Enhanced Rate for 6 of the 12 activities in the PIP or has an equivalent level of need
The child (or children) has yet to reach their 25th birthday
The family are living in financial hardship
The family has not received a grant for this child (or children) from the Marvellous Family Grants in the last 12 months
The grant is for the benefit of the child directly.

http://www.roalddahl.com/charity